As you might expect, there are a lot of links to people and groups that I think are of interest . . .
So, one way of perhaps creating some order here is to sub-categorise them into the following:
Bully/victim – including ‘traditional’ (face-2-face: f2f) bullying, cyberbullying, cyber-aggression, disablist bulllying, alterophobia, etc.
Rare Disease and 22q11.2 Deletion Syndrome
First and foremost, and especially if you are in Ireland, you should visit the 22q Ireland webpage and follow them on Twitter: @22Q11_Ireland
22q Ireland is an exceptional resource and Anne Lawlor is a “font of knowledge” that we are so lucky to have working on the various issues related to 22q11.2 Deletion Syndrome. 22q Ireland does much more than simply provide mutual help and support for individuals and families affected by 22q11.2 Deletion Syndrome / DiGeorge Syndrome / V.C.F.S.
If you have any concerns about “transition planning” – either for a child moving to primary school, or to post-primary school, I cannot recommend highly enough the experience and services of Alison Doyle at Caerus Education. Alison has a wealth of knowledge and experience in the world of disability, advocacy, and psychometric screening.
Also get in touch with Alison if you need help with goal-focused personal, educational, or academic interventions for young people and adults experiencing challenges in post-primary school, further education, higher education, or employment.
Alison can be found on Twitter at: @caeruseducation
John J. Foxe
Editor-in-Chief, European Journal of Neuroscience; Prof and Chair of Neuroscience @ The University of Rochester – #COYI
The Children’s Hospital of Philadelphia is one of the leading pediatric hospitals & research facilities in the world. Find out why Hope Lives Here. Right Here.
Neuroscience, psychology and psychiatry through a skeptical lens. Just a brain with some eyes. Blogs for @DiscoverMag and @PLOSNeuro.
I am a neurogeneticist interested in the genetics of brain wiring and its contribution to variation in human faculties.