Useful Resources

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Related Links

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Rare Disease and 22q11.2 Deletion Syndrome

 

First and foremost, and especially if you are in Ireland, you should visit the 22q Ireland webpage and follow them on Twitter: @22Q11_Ireland

22q Ireland is an exceptional resource and Anne Lawlor is a “font of knowledge” that we are so lucky to have working on the various issues related to 22q11.2 Deletion Syndrome.  22q Ireland does much more than simply provide mutual help and support for individuals and families affected by 22q11.2 Deletion Syndrome / DiGeorge Syndrome / V.C.F.S.

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If you have any concerns about “transition planning” – either for a child moving to primary school, or to post-primary school, I cannot recommend highly enough the experience and services of Alison Doyle at Caerus Education.  Alison has a wealth of knowledge and experience in the world of disability, advocacy, and psychometric screening.

Also get in touch with Alison if you need help with goal-focused personal, educational, or academic interventions for young people and adults experiencing challenges in post-primary school, further education, higher education, or employment.

Alison can be found on Twitter at: @caeruseducation

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