At a recent meeting in Sheffield (England), someone reported about a girl from Ireland and her mother.

The report was that they were “legends”.

Who were they?  Here is the first blog from this dynamic duo.


There was a time when I would hear a voice in my head – I sometimes thought I wasn’t good enough and kept saying I’d rather be dead.

There was a time when I just lived in darkness, all I could see was another person that did want to be me.

I was so quiet I would not speak, sitting in a corner in darkness I felt weak, my own dreams I would not seek.

Even had nightmares when I fell asleep.

But now I’ve gone through change – a bit older, a bit wiser, a bit cooler, and a bit calmer.

Now I have a choice – I have a voice.

I don’t sit on my ass all day – I get up and do things my way.

No one can tell me I’m not good at anything – I would just prove you wrong, because I have the strength and I am strong.
. . . and what will always be my own favourite



Kids with 22q need to believe in themselves and they need to believe in their dreams, their goals. They need to believe that they can have a life like everyone else, get married, have kids and have a job. They need to believe in themselves. They need to believe that they can do well in school – they can go to college and get an education.

Parents need to believe in their kids, need to respect their kids. They need to accept the fact that their child has 22q or their child won’t be able to live their life. When the parent accepts it the child will too.

Most number one thing to do – accept what you have.

You do that and your life will change.
Áine Lawlor, 2010


Posted on 29th November, 2015. Copyright Conor Mc Guckin